pickAs a woman diagnosed with hEDS in the last 1.5 years, this book is so validating. It also explains so much of my own experiences with medical professionals. The EDS explains so much of my life history. This book is such an important starting point, this should be required reading for any medical professional to be licensed in the 2020s.
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GingerAntics How are women to be treated like human beings with the ability to make decisions for themselves about their lives and their medical treatment socially and culturally, if medical professionals don‘t even take us seriously as human beings? #elinorcleghorn #unwellwomen #chronicillness #sexism #everydaysexism #eds #heds #pain #chronicpain #iamanunwellwoman 3mo
GingerAntics This was quite a lovely companion today as I sat in dealing with low level joint pain and ridiculously dry eyes (I swear, every day I find a new connection between something truly annoying in my life and EDS). 3mo
kspenmoll I am happy you have a diagnosis; sad you are living with its symptoms. I looked it up but sounds like there are many kinds. Do you have a source you think is best? I know we are just litsy friends but i care for you. 🩵 I got Unwell Women from the library. (edited) 3mo
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GingerAntics @kspenmoll honestly, I‘m still wrapping my head around it. Every time I turn around another random thing is tied to it. lol I‘ve taken to just googling the symptom and EDS just to see what pops up. lol There is the Ehlor‘s Danlos Society that‘s pretty good. I haven‘t found any books yet. There are 13 kinds or 16 kinds. It‘s a lot of kinds. I have the hypermobile kind. It‘s the only one without a genetic test. 3mo
GingerAntics @kspenmoll it‘s finally an answer to why I‘ve felt like I was “getting old” since my late teens. It took a physical therapist asking the right questions for me to end up with a diagnosis. Man I love that guy! The book is great! It‘s also kind of sad how women have been completely abandoned and even outright harmed by the medical profession when men took over and started outlawing midwives/women from attending births and caring for each other. 3mo
GingerAntics @kspenmoll like most things, if guys would just keep out of it, or come in asking questions instead of making pronouncements, we would be SO much further along. 3mo
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