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#AlzheimersDisease
blurb
Thatbooknerd
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Author Thomas DeBaggio, (1942-2011).

Photos before and during/after Alzheimer‘s.

Diagnosis: 57 years old.
Death: 69 years old.
Over a decade of pure hell. 💔

AmyG This was my Mom. She had it, too, for 11 years. Horrible disease. 😞 1w
12 likes1 comment
review
Thatbooknerd
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Pickpick

I wanted to read this book quickly to get it out of my house, and donate it to a local little free library. These memoirs are all too personal to me—as a hospice volunteer I spend time with patients (and their families) who have this demon of a disease; my father has it too, and as of now, has been on hospice almost 3 months. The author was diagnosed with early onset at only 57 years old, and died at 69. Here, he shares his early experiences ⬇️

Thatbooknerd with the disease, writing in a unique way, in increments: memories of childhood, adolescence, adulthood; research on the disease; the current hell he was experiencing each moment, day, and night. He shares the reactions of family, friends, and customers from the gardening business he ran for 25 years. Some people sent him unwanted religious information and false hope cures in the mail. He did an interview with NPR and wrote another book. In⬇️ 1w
charl08 Sending my best to you and the family. Such a hard diagnosis. 1w
Thatbooknerd the beginning, he wanted to die because he knew what was coming and was already so miserable, but his wife pushed back, so he chose to ‘stay‘ and try to record his experiences in an attempt to shed light on this horrific thief of all thieves: Alzheimer‘s. Tissues will be needed. 1w
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Amiable My husband and I have a friend who was diagnosed with frontotemporal dementia at 56. He‘s 7 years into it now and it‘s rough. I need to read this to better understand what he‘s going (gone) through. 1w
AmyG I‘m so sorry about your Dad. My Mom had this. Horrible disease. Heartbreaking. 1w
DaveGreen7777 I‘m so sorry about your father. 😔 Alzheimer‘s is such a terrible disease, it causes so much pain for the people who have it, as well as their loved ones who have to watch what‘s happening to them. 😢 1w
15 likes6 comments
quote
Thatbooknerd
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It may appear to be just another illness, especially of the elderly, but Alzheimer‘s is a unique and wrenching disease that destroys the mind, without which you lose your sense of being human. In its early stages, when you are most sensitively aware, you watch helplessly as you slowly lose yourself. Memory disappears. Language is gone. You forget who you are and become lost and dependent. Yet you continue on in silence, the body unsure ⬇️

Thatbooknerd and hesitating, as the diabolical disease proceeds to kill you by slowly destroying what remains of your body and your life. But the destruction continues, doing its best to uproot your loved ones and dip their hearts in the fire. 1w
13 likes1 comment
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Thatbooknerd
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I know it is difficult for them to watch me deteriorate and if I keep quiet they won‘t see what is really happening. I do not want to make them suffer with me but I also want them to understand the uncontrolled evil this disease represents. They must know, as others should, the destructive power of it. Although subtle in attack, Alzheimer‘s is the closest thing to being eaten alive slowly. I am losing my ability to wrote. I see the signs⬇️

Thatbooknerd of verbal atrophy every day. Cut my legs off but don‘t take away my ability to think, dream, and write. It is too late to reconstruct the dreams of my youth or create a new life. I am staring a monster in the face. 1w
11 likes1 comment
blurb
Thatbooknerd
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I‘m 82 pages in, and this is a hard read. These kinds of memoirs always are.
You can see Thomas isn‘t there in this photo…he‘s far away somewhere. Link to listen: Tom' DeBaggio's Decade With Alzheimer's Disease

https://www.npr.org/2010/06/16/127857149/a-decade-of-alzheimers-devastating-impa...

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Tkimsal
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Pickpick

Current read. Short but powerful novel. Had seen this on social media and decided to give it a go after recalling it languishing on my Kindle for a few years. I‘m glad I read this.

8 likes1 stack add
blurb
GynecoInPhg
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Gynecologist in Phagwara

A gynecologist in Phagwara provides expert care for women at every stage of life, from routine checkups to specialized treatments, ensuring health, comfort, and guidance you can trust.

https://share.google/IWJidg2nS8Cjqas99

review
readingjedi
Somebody I Used to Know | Wendy Mitchell
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Mehso-so

Wendy was, without a doubt, an extraordinary individual with many outstanding qualities. Her strength of personality coupled with her incredible drive, determination, and positivity in the face of what for lesser mortals would've been a devastating diagnosis is inspiring and humbling.

However, I was not in the right place for this...perhaps no more medical memoirs for me for a while...

I'm sure others would find this a source of hope.

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mandarchy
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Pickpick

While researching books about #alzheimers and #senility on Litsy, I found this title. I did not care for the reader of this audio book, she sounded high falutin to me (probably because I'm low maintenance West Coast 🇺🇸). But the book hit the spot. It had more to do with Patti's grief given the circumstances of her father's disease and her parents' lack of affection which I can relate to.

mandarchy When she saw her mother's dead body, she expected her mother to sit up and tell her to cut her hair. 😂 My mom would tell me to braid mine. 5mo
mandarchy Her parents, in case you missed it, were Nancy and Ronald Reagan. 5mo
32 likes2 comments
review
Pruzy
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Pickpick

As someone who was doing biomedical research before becoming a dad, I found this book to be a fascinating read!

During my graduate studies and post-doc, I heard of the odd case of academic dishonesty and data fabrication, mostly through the media. This book was eye-opening because data manipulation is rampant in the field of Alzheimer‘s research, with cases stretching back decades with some of the most accomplished researchers.

A must read!

Kitta I work in biomedical science still, in a field closely related to the scandal involving Elizabeth Holmes and Theranos 😬 These kind of books interest me a lot! And I‘d recommend the one about her: (edited) 6mo
Pruzy @Kitta I‘ve read that one! Also another crazy and fascinating story. Have you watched the mini-series starring Amanda Seyfried as Holmes? It‘s called The Dropout 6mo
Kitta @Pruzy yes! I thought it was really good. 6mo
55 likes2 stack adds3 comments