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The Invisible Kingdom
The Invisible Kingdom: Reimagining Chronic Illness | Meghan O'Rourke
10 posts | 8 read | 1 reading | 21 to read
A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan ORourke delivers a revelatory investigation into this elusive category of invisible illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, ORourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, ORourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
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Aimeesue
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Having just collected my fourth autoimmune disorder - rheumatoid arthritis! Yay!- I thought it was time to give this a listen. O‘Rourke does an excellent job of explaining why ADs are so difficult to diagnose, particularly in the US healthcare system. Freud, the “hysterical woman” trope, and the emphasis on treatment of acute issues all play a part. It‘s good to know that I‘M not the crazy one, finally. Highly recommended.

LeahBergen Oh, that sucks. I‘m sorry to hear that. 1y
jlhammar Sorry to hear that. I've been meaning to read this one - thanks for the reminder! Just got in line for the audiobook. 1y
Aimeesue @LeahBergen Thanks. Having an explanation is a good thing, though. ❤️ 1y
See All 6 Comments
Aimeesue @jlhammar Thanks. Hopefully knowing what it is will be helpful in the long run, and will help to manage it. It‘s good to know that despite what docs have to,d me over the last few years, there IS a reason for my symptoms after all! Our healthcare system isn‘t set up to get answers for patients, just to treat symptoms and move them on. The discussion of “siloing” in the book was super helpful. 1y
vivastory The US health system *sigh* I'm sorry to hear about your diagnosis. I've been sorta stuck at my job because of the decent health benefits they offer compared to the truly deplorable ones elsewhere 1y
Aimeesue @vivastory Thanks. It does suck. I‘m very lucky in that I have great insurance and access to care (Tricare) despite the fact that my husband left the military. EVERYONE should have that option, at the very least, though I‘d prefer National Health Care. The US is so backward. 😡 1y
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Chelsea.Poole
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Pickpick

Chronically ill, O‘Rourke shares her struggles with finding a diagnosis to help manage her “invisible” condition which doesn‘t show up on traditional medical tests. She eloquently explained the feeling of hopelessness she experienced during her many visits with doctors, how it feels NOT to be believed, why she felt that alternative medicine held promise for her, and connecting with others in the online community as a way to feel seen. Audio is 👍

kspenmoll Wonderful review! I have this in book form but audio sounds good. 1y
Megabooks I related to this so much. 1y
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plemmdog
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I usually avoid illness memoirs but this was gifted to me, and it‘s well written. Medicine still fails many living with chronic disease, and long Covid has demonstrated that amply. There‘s so much we still don‘t know about our bodies…

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DieAReader
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Andrew65 Great 👏👏👏 2y
TheAromaofBooks Woohoo!! 2y
28 likes3 comments
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BarbaraTheBibliophage
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Pickpick

This is two parts heartstring-pulling pain and philosophical pondering, combined with two parts anger and frustration. There‘s some hopefulness added in the manner of icing on the cake, but it‘s quite tentative. All in all, if a chronic illness has touched you or those you love, this book is a must-read. Extraordinarily well-done discussion of a difficult topic to capture.

Full review https://www.TheBibliophage.com #thebibliophage2022

Megabooks Great review! I enjoyed this too. 2y
BarbaraTheBibliophage @Megabooks Thanks. I wish it didn‘t feel so close to my own experiences. But as such, she does a good job describing the situation with the right balance of fact vs emotion. 2y
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kspenmoll
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#bookmail
These came today.I love Meghan O‘Rouke‘s writing, essays,magazine & newspaper articles,her previous book,The Long Goodbye. Her stamina,grace,resolve,her tireless search for heath,her doggedness& determination in challenging the medical establishment leaves me in awe.She is a champion for all of us.
I am ready now for #sundaybuddyread in June.

Megabooks Invisible Kingdom definitely won‘t disappoint! 3y
BarbaraTheBibliophage I will definitely read her back list now that I read Invisible — it‘s just so good. 2y
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catiewithac
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Wow! I really felt seen by O‘Rourke‘s memoir about living with chronic illness. She shares her own struggles to be believed, diagnosed and treated. Alongside her compelling narrative is a general look at how medicine has largely ignored lingering conditions that disproportionately impact women. This should be required reading for healthcare professionals!

kspenmoll I love her writing & so want to read this! 3y
Megabooks I agree 💯💯 3y
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Texreader
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Caterina My fiance (as of yesterday) bought me the book in the picture and it's so good so far! I have a lot of the same chronic illnesses the author has and is talking about, and I'm really excited about reading it! 3y
charl08 Ooh a list. Lots of tempting NF here! 3y
Texreader @charl08 I know! I‘m so glad I‘ve gotten into reading nonfiction. The writing is so much better than when I had to read nonfiction in high school and college in the 1980-90s. 3y
Texreader @Caterina This one has tempted me because I have chronic pain, going on 10+ years. 🙁 I‘ll look forward to your review. 3y
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Megabooks
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This was a hard but necessary read for me. Meghan, like many women, has an invisible illness. She was bounced around doctor to doctor and faced doubt and quackery both before improving enough to have children and live a relatively normal life. Like many of us with chronic illness, she has the sword of Damocles hanging over any recovery. She looks at it from her own perspective but also the larger narrative of the broken US healthcare system.

Cinfhen I can only imagine how difficult this must have been. 3y
Megabooks @Cinfhen you know better than anyone I have been going through it, but even though it was hard to read, I felt very seen by this book. 3y
BarbaraBB It‘s always so good to feel seen. Even though it was a tough read I am glad it worked for you. 🤍🤍 3y
Megabooks @BarbaraBB thanks 😘😘 3y
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Rhondareads
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The author has written a heart wrenching raw look at life with a chronic illness.Her writing is so beautiful it makes the sadness of her illness her symptoms search for cures desperate for answers even more haunting,