Bittersweet to come to the realization that he was happy in life because of his disease. Reminder for me to appreciate my life currently because I know not what tomorrow brings.
So good. I‘m about 1/2 way through and can‘t put it down!
Sometimes you need to read a book that rips your heart open. I think that‘s going to be this one.
#bookhaul I stopped at Barnes and Noble for a gift for my Mom, left with that and these for me!!!❤❤❤
At the age of 33 Simon Fitzmaurice was diagnosed with ALS (Lou Gehrig's Disease). Simon was a devoted husband, father, and Irish filmmaker. The diagnosis didn't change that. Defying expectations, Simon lived years longer then expected with help from his family, doctors, and a rarely prescribed home ventilator. But this book isn't about ALS. Rather it's a memoir, written using an eye-gaze computer, of a man who refused to give up the life he loved.
Quick, powerful book exploring quality of life when dealing with a terminal illness. Another book that focuses on the beauty of everyday life and explained choices with honesty rather than pontificating.
#TBRtemptation post 9! Simon was diagnosed with Motor Neurone Diseases in 2008 and told he had 4 years to live. In 2010, his lungs collapsed & he defied medical opinion by staying only on a ventilator. The young filmmaker, father of 5 small children, tell us his story in beautiful,stark prose. He used an eye-gaze computer to write this memoir. A book about family & relationships, what connects & separates us, about love.#blameLitsy #blameMrBook 😎
Finished this last week. It was a nice, quick, inspiring little read. The short choppy sentences were hard to get used to at first but they grew on me eventually and it moved the story along at a nice pace.
#20factsaboutme
~I'm 26
~never dated
~don't want kids
~was born in North Dakota
~lived in Japan for 2 years
~lived in Cali most of my life
~hope to move to Oregon in the next few years
~addicted to coffee
~used to write poetry
~have a twin brother
~consitently kept a journal since I was 6
~can't swim
~3 tattoos
~9 piercings
~I've had 18 roommates
~I love dogs
~Don't really like cats
~never been to a wedding
~hate driving
~never been to europe
This one is both heartbreaking and beautiful. When Fitzmaurice is diagnosed with ALS, he chooses to live and to love. He is a film maker and you can see that in his writing -- he creates scenes and moments throughout the memoir that connect you emotionally to his experiences. Exquisite.
2 pages in and it has stopped me in my tracks. Pick this one up.
Some inspiration to get me going on my bus ride to work this morning. This song ("Gotta get up / Listen to me.") may carry me through the day. This book is beautiful; I think it's going to break my heart and fill me with light at the same time. "Every breath of us is meaning." Let's do this day.