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It's Not Yet Dark
It's Not Yet Dark | Simon Fitzmaurice
17 posts | 12 read | 27 to read
In 2008, Simon Fitzmaurice was diagnosed with Motor Neurone Disease (mnd). He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive. Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent. Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.
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Pms
It's Not Yet Dark | Simon Fitzmaurice
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Pms
It's Not Yet Dark | Simon Fitzmaurice
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Pms
It's Not Yet Dark | Simon Fitzmaurice
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Bittersweet to come to the realization that he was happy in life because of his disease. Reminder for me to appreciate my life currently because I know not what tomorrow brings.

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Samplergal
It's Not Yet Dark | Simon Fitzmaurice
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Pickpick

Such a wonderful book!

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Samplergal
It's Not Yet Dark | Simon Fitzmaurice
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So good. I‘m about 1/2 way through and can‘t put it down!

Caterina I listened to this last year and really enjoyed it! 6y
Samplergal @Caterina 👍🏽 6y
78 likes2 stack adds2 comments
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chowmeyow
It's Not Yet Dark | Simon Fitzmaurice
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Sometimes you need to read a book that rips your heart open. I think that‘s going to be this one.

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AprilMae
It's Not Yet Dark | Simon Fitzmaurice
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#bookhaul I stopped at Barnes and Noble for a gift for my Mom, left with that and these for me!!!❤❤❤

Jess7 Fredrik Backman. 💙💙 7y
mrozzz Ooooohhhhh 👌🏻☺️ 7y
GondorGirl The tagged book was SO good! 7y
31 likes1 stack add3 comments
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GondorGirl
It's Not Yet Dark | Simon Fitzmaurice
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Pickpick

At the age of 33 Simon Fitzmaurice was diagnosed with ALS (Lou Gehrig's Disease). Simon was a devoted husband, father, and Irish filmmaker. The diagnosis didn't change that. Defying expectations, Simon lived years longer then expected with help from his family, doctors, and a rarely prescribed home ventilator. But this book isn't about ALS. Rather it's a memoir, written using an eye-gaze computer, of a man who refused to give up the life he loved.

Cinfhen Just read a book about ALS 💔 7y
GondorGirl @Cinfhen Thanks for the recommendation! I just added it to my stack. 7y
Cinfhen I'm in awe of couples who can survive these types of challenges...great review 7y
GondorGirl @Cinfhen Not only did they survive, they ended up having twins after he was mostly immobile. It's a really short book, and I'd highly recommend it. 7y
67 likes2 stack adds4 comments
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Floresj
It's Not Yet Dark | Simon Fitzmaurice
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Pickpick

Quick, powerful book exploring quality of life when dealing with a terminal illness. Another book that focuses on the beauty of everyday life and explained choices with honesty rather than pontificating.

10 likes1 stack add
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MrBook
It's Not Yet Dark | Simon Fitzmaurice
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#TBRtemptation post 9! Simon was diagnosed with Motor Neurone Diseases in 2008 and told he had 4 years to live. In 2010, his lungs collapsed & he defied medical opinion by staying only on a ventilator. The young filmmaker, father of 5 small children, tell us his story in beautiful,stark prose. He used an eye-gaze computer to write this memoir. A book about family & relationships, what connects & separates us, about love.#blameLitsy #blameMrBook 😎

lauralovesbooks1 This one was excellent. His talent as a filmmaker comes through in his ability to create small moments or scenes that perfectly capture an experience. 7y
68 likes9 stack adds1 comment
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CaliforniaCay
It's Not Yet Dark | Simon Fitzmaurice
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Pickpick

Finished this last week. It was a nice, quick, inspiring little read. The short choppy sentences were hard to get used to at first but they grew on me eventually and it moved the story along at a nice pace.

28 likes1 stack add
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CaliforniaCay
It's Not Yet Dark | Simon Fitzmaurice
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#20factsaboutme
~I'm 26
~never dated
~don't want kids
~was born in North Dakota
~lived in Japan for 2 years
~lived in Cali most of my life
~hope to move to Oregon in the next few years
~addicted to coffee
~used to write poetry
~have a twin brother
~consitently kept a journal since I was 6
~can't swim
~3 tattoos
~9 piercings
~I've had 18 roommates
~I love dogs
~Don't really like cats
~never been to a wedding
~hate driving
~never been to europe

EchoLogical 18 roommates? Wow! 7y
CaliforniaCay @EchoLogical unfortunately, yes. my fun fact #21 is I really hope to live alone next year 🤣🤣 7y
CouronneDhiver I hate driving too! 😂 Thought I was the only one 7y
See All 9 Comments
CaliforniaCay @CouronneDhiver definitely not the only one. Driving always makes me so nervous! 😫 7y
MemoirsForMe 18 roommates? No wonder you like to retreat and read! 😊📚 7y
Mommamanzi Soooo you have the coolest life ever. Just saying! 7y
CaliforniaCay Funny, @Mommamanzi I was just going to say the same about you! :) 7y
Easytiger :) happy early bday, I remember you said it was soon!! 7y
CaliforniaCay Thanks @Spacecowboytx same to you buddy =] 7y
55 likes1 stack add9 comments
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lauralovesbooks1
It's Not Yet Dark | Simon Fitzmaurice
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Pickpick

This one is both heartbreaking and beautiful. When Fitzmaurice is diagnosed with ALS, he chooses to live and to love. He is a film maker and you can see that in his writing -- he creates scenes and moments throughout the memoir that connect you emotionally to his experiences. Exquisite.

KathyGates You've captured his style perfectly 7y
16 likes1 stack add1 comment
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lauralovesbooks1
It's Not Yet Dark | Simon Fitzmaurice
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I love this!

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lauralovesbooks1
It's Not Yet Dark | Simon Fitzmaurice
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2 pages in and it has stopped me in my tracks. Pick this one up.

9 likes2 stack adds
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aeeklund
It's Not Yet Dark | Simon Fitzmaurice
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Some inspiration to get me going on my bus ride to work this morning. This song ("Gotta get up / Listen to me.") may carry me through the day. This book is beautiful; I think it's going to break my heart and fill me with light at the same time. "Every breath of us is meaning." Let's do this day.

27 likes1 stack add