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Sipping Dom Pérignon Through a Straw
Sipping Dom Pérignon Through a Straw: Reimagining Success as a Disabled Achiever | Eddie Ndopu
4 posts | 3 read | 2 to read
Apple's Best Books of August 2023 A memoir penned with one good finger, Ndopu writes about being profoundly disabled and profoundly successful Global humanitarian Eddie Ndopu was born with spinal muscular atrophy, a rare degenerative motor neuron disease affecting his mobility. He was told that he wouldn’t live beyond age five and yet, Ndopu thrived. He grew up loving pop music, lip syncing the latest hits, and watching The Bold and the Beautiful for the haute couture, and was the only wheelchair user at his school, where he flourished academically. By his late teens, he had become a sought after speaker, travelling the world to address audiences about disability justice. Ndopu was ecstatic when he was later accepted on a full scholarship into one of the world's most prestigious schools, Oxford University. But he soon learns that it's not just the medical community he must thwart— it's the educational one too. In Sipping Dom Pérignon Through a Straw, we follow Ndopu, sporting his oversized, bejewelled sunglasses, as he scales the mountain of success, only to find exclusion, discrimination, and neglect waiting for him on the other side. Like every other student, Ndopu tries to keep up appearances—dashing to and from his public policy lectures before meeting for cocktails with his squad, all while campaigning to become student body president. Privately, however, Ndopu faces obstacles that are all too familiar to people with disabilities, yet remain unnoticed by most people. With the revolving door of care aides, hefty bills, and a lack of support from the university, Ndopu feels alienated by his environment. As he soars professionally, sipping champagne with world leaders, he continues to feel the loneliness and pressure of being the only one in the room. Determined to carve out his place in the world, he must challenge bias at the highest echelons of power and prestige. But as the pressure mounts, Ndopu must find his stride or collapse under the crushing weight of ableism. Written with his one good finger, this evocative, searing, and vulnerable prose will leave you spellbound by Ndopu’s remarkable journey to reach beyond ableism, reminding us of our own capacity for resilience.
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arlenefinnigan
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This is a brilliant memoir. It centres around Eddie's experience at Oxford University, which should have been a fantastic opportunity but became an ordeal, when the 'full scholarship' he won won't cover the essential care he needs, and he's expected to fundraise this himself. It's a great insight into the realities of living in a world that excludes disabled people, and challenges 'uprights' to reconsider what we mean by 'reasonable adjustments'.

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arlenefinnigan
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Chelsea.Poole
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Eddie Ndopu is an accomplished South African with a great sense of humor and style. His memoir was written using his ONE finger he had control of! His determination is amazing and shown through his trials at Oxford University, where he was denied basic care needs and responsible for fund raising for those expenses. I loved his narration and learning about ableism, however, I would have liked a bit more of his backstory.

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Megabooks
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The ableist excuses of major institutions must stop. Eddie handled a very difficult situation thrust upon him during his time at Oxford with grace and humor.

Eddie has SMA and was the first African disabled student admitted there. He received a full scholarship including boarding and expenses, but they refused to cover his necessary care aide. This is the story of his fight for adequate support while enjoying his masters program.

Cinfhen So frustrating! You‘d think higher places of learning would get it right 😖 1y
Megabooks @Cinfhen especially ones with endowments as large as Oxford! 1y
Megabooks Gotta tag my favorite memoir Queen! 👑 @Chelsea.Poole this is a good short one! 1y
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TrishB @Cinfhen @Megabooks could tell you a million stories 😞 institutions with less money do better by their students. Though the current government in the U.K. took away all disabled support for students and told universities they must fund them. And you get these situations. And what an achievement to get there in the first place. 1y
Megabooks @TrishB I knew you worked in this area and would have many of your own stories. They made him crowd fund for his money, and when a large donor to the university offered to cover the last bit in full, the head of his college intervened and stopped it. 🤯🤦ðŸ»â€â™€ï¸ðŸ¤¦ðŸ»â€â™€ï¸ he faced all of it with such grace though. I can‘t imagine the stress he was under. And some of his care aides were woefully inadequate, too. 1y
TrishB Just another barrier for him 😞 sounds awful. We must all do better. 1y
Chelsea.Poole I‘m on hold for this!! Thank you! How‘s audio? 1y
Cinfhen WOW!! That‘s awful @TrishB I bet you have a billion stories!!!! 1y
batsy Good lord, that is so horrible. Just another instance of making care work an individual "problem" as opposed to the kind of social assistance that institutions, especially ones backed with tremendous amount of funding, should provide. 1y
BarbaraBB That is horrible. We should do better indeed @TrishB 1y
Megabooks @Chelsea.Poole excellent! Loved his South African accent. Just a bit stronger than Trevor Noah‘s. 1y
Chelsea.Poole Great!! Thanks 😊 1y
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